SURVIVING THE GAME – PART I

GREETINGS & BLESSINGS TO ALL THAT FIND THE TIME

WELL FOR THOSE OF YOU THAT DON’T KNOW BY NOW, LIFE IN IT’S ENTIRETY IS ONE BIG GAME, AND ALL THE DAYS YOU OPEN YOUR EYES TO GREET THE SUN ARE BUT MERE MINI GAMES. BUT NOT FOR ONE SECOND SHOULD YOU THE GAMER GET IT TWISTED, NOR SHOULD YOU TAKE IT FOR GRANTED. THE GAME OF LIFE IS FULL OF PEAKS AND VALLEYS, NAYS AND YEA’S, JOY AND PAIN, AND YES SUNSHINE AND RAIN. THE MINI GAMES ARE THE DAYS OF YOUR LIFE AND WHETHER YOU WIN OR LOSE IS DETERMINED BY WHAT YOU DO OR NOT ON THAT PARTICULAR DAY. SO HOW DO YOU SURVIVE THE GAME? HOW DO YOU NAVIGATE THE GAME WHEN YOUR BOARD HAS BEEN FLIPPED OVER AND THE PIECES ARE SCATTERED ABOUT? WELL MY BOARD WAS FLIPPED OVER RECENTLY AND I WAS ABLE TO PUT THE PIECES BACK WHERE THEY BELONGED. NOW DON’T GET ME WRONG, IT WAS NOT WITHOUT HELP THAT I WAS ABLE TO DO THIS, I HAD THE SUPPORT OF ALL THE PLAYERS THAT TAKE PART IN MY GAME DAILY. SO LET’S BEGIN ON HOW THE SUGGABEE SURVIVED HER GAME, REMEMBER THIS IS PART 1. THOUGH I DID NOT KNOW IT AT THE TIME, SURVIVING BEGAN FOR ME AT 11 YEARS OLD. I BEGAN TO BECOME ILL, MY PARENTS NOTICED THAT I WAS NOT AT ALL ANYMORE, THE RAMBUNCTIOUS CHILD THAT EVERYONE KNEW ME TO BE. I BECAME SLUGGISH AND EXHAUSTED. MY LEGS, FEET AND HANDS BEGAN TO SWELL FOR REASONS WE WERE NOT YET AWARE OF, MY MOTHER BEGAN TO TAKE ME TO SPECIALIST, AS OUR GENERAL PED. COULD NOT DETERMINE WHAT WAS WRONG. MY DR. COULD NOT FIGURE OUT WHY MY LEGS AND FEET WOULD SWELL AND HAVE WHAT APPEARED TO BE BROKEN BLOOD VESSELS ALL OVER THEM. I WAS DIAGNOSED WITH JUVENILE RHEUMATOID ARTHRITIS. BUT WAS THAT WHAT WAS WRONG? NO, NO ONE WAS PREPARED FOR WHAT THE REAL DIAGNOSES WOULD BE. I BEGAN TO SEE A GASTROENTEROLOGIST AT CHILDREN’S HOSPITAL AND MY PARENTS WERE TOLD THAT I HAD CHRONIC AUTO-IMMUNE HEPATITIS. WHY, HOW, WHERE DID I GET THIS? BUT THERE WAS NO WHY (JUST HAPPENS SOMETIMES), NO HOW, NO WHERE, (IT IS NOT SOMETHING YOU CATCH, IT JUST DEVELOPS IF ALL THE CHARACTERISTICS ARE IN PLACE).THIS IS NOT LIKE ALL YOUR OTHER HEPATITIS DISEASES NO THIS IS AN ENTIRELY DIFFERENT VILLAIN IN THE GAME. NOT SEXUALLY TRANSMITTED, DOESN’T COME OFF A TOILET SEAT OR FROM A DIRTY NEEDLE, LIKE SICKLE CELL, OR ARTHRITIS, JUST SOMETHING THAT HAPPENS. JUST SO HAPPENS GIRLS BETWEEN THE AGES OF 2 AND 14 ARE PRONE TO IT, FOR WHAT EVER REASON, YOU CAN BE A CARRIER AND NEVER DEVELOP IT. BUT I DID. CHRONIC AUTO IMMUNE HEPATITIS IS JUST WHAT IT SOUNDS LIKE – CHRONIC (FOREVER) – AUTO-IMMUNE (IMMUNE SYSTEM) – HEPATITIS (LIVER DISORDER) SO TO SUM IT UP MY IMMUNE SYSTEM WAS ATTACKING MY LIVER AND IT ALWAYS WOULD. SO, TO BE SURE THAT THIS IS TRULY WHAT I HAD, I WOULD NEED A LIVER BIOPSY. SO THERE IT WAS MY FIRST SURGERY AT 12 YEARS OLD. SO I HAVE THE BIOPSY AND YES I AM SICK, SOME OF MY LIVER HAS CIRRHOSIS ALREADY AND IT IS ENLARGED. I BEGAN MEDICATION IMMEDIATELY, STEROIDS. YES STEROIDS AT A TIME THAT I BEGAN PUBERTY. IT WAS EXTREMELY HARD, I BEGAN TO GAIN WEIGHT, MY FACE BROKE OUT BADLY AND MY LONG THICK HAIR BEGAN TO BREAK OFF. I DID NOT KNOW IT AT THE TIME BUT I WAS IN FOR A LONG TIME OF FIGHTING WITH THIS DISEASE. MY PARENTS KNEW, BUT WHAT WOULD ULTIMATELY COME TO HEAD NO ONE WAS PREPARED FOR.SO AS THE YEARS WENT BY I BEGAN TO UNDERSTAND MY DISEASE A LITTLE MORE, I KNEW I WAS NOT NORMAL, BASICALLY I WOULD HAVE TO MONITOR EVERYTHING, NO FRIED FOODS,CUT DOWN THE DAIRY, NO SALT (WHAT) I WAS NOT PLEASED WITH THIS, NOT PLEASED AT ALL. BUT IN THE LONG RUN THE CHANGE IN DIET WAS BETTER FOR ME ANYWAY. SO TIME WENT ON, YEARS PASSED, I HAD ANOTHER BIOPSY AT 15 YEARS OLD, AND MY MEDICATION WENT UP AND DOWN IN DOSAGE. YEAH, THIS HEPATITIS THING WAS AGGRESSIVE AND WOULD NOT LET ME GO. THEN AT 19 YEARS OLD, SUDDENLY I WAS IN REMISSION, THERE WAS NO TRACE OF THIS DISEASE THAT I HAD COME TO KNOW AS A STRONG PLAYER IN MY GAME WAS GONE, OR WAS IT?

STAY TUNED FOR PART 2, FRIDAY, JANUARY 27, 2012

SINCERELY THE SUGGABEE

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